That's pretty much what it felt like at Hopkins for Reagan's appointment with the swallow team. We met with a speech pathologist there who specializes in infant feeding issues. Our appointment time was 11:30 and we were supposed to not feed Reagan for about three hours prior. One thing I did not know about doctor appointments at Hopkins is that you wait. FOREVER. And Ever. So therefore, we were still waiting around 12:30 and Reagan was absolutely starving. I went ahead and started feeding her anyway. The specialist finally came in and did get to hear her eat a little bit. She was SO hungry. I felt horrible as she was looking at me, crying, wondering why the hell her mommy wasn't feeding her. I still can't get over how much trust I see in her eyes, and I will do whatever I can to protect her.
Nothing really came of the appointment, except now we meet with the GI team on the 26th at 1:45. I'm not supposed to feed her before that, either. Reagan also has a weight check later this week to ensure that she is gaining weight despite the eating issues and frequent spit up and occasional but steady vomiting.
I have a feeling we're going to be running to doctors for awhile.......
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